Joseph has one round of treatments after another, before and after school, which can last up to 2 hours. He has a ventilator now which blows air in to his lungs to open up the airways to make mucus clearance easier. He nebulises 3 drugs, twice a day - DNase to thin the mucus, hypertonic saline to help shift the mucus, and nebulised antibiotics. He has Insulin due to having CF related diabetes and Ursodeoxycholic acid for liver disease. He takes vitamins for bone density: D3, D, and vitamin E. Creon with all his food and overnight feed, probiotics as well as Domperidone for sickness. He has to endure various forms of physio such as percussion, acapella or PEP. He has nasal polyps so he needs spray up each nostril once a day. He has to have IV antibiotics every 3 months for 2-3 weeks at a time. His growth is poor and he is noticeably small for his age.
And yet he never complains but I know he hates CF and all it entails. He just wants to live a normal, happy, pain free life.